Do Better.

Dear Reader,

I am tired.

More tired than I’ve been in a while.

This afternoon, as I was cleaning my mother’s kitchen, I had a thought. And one that was highly unusual for me– What if I just give up? My friends and family would miss me, sure, but they’d heal. They’d get over it and move on. Wouldn’t that be easy? To just let go and move on to another plane? To release myself from worry and pain and fear? To stop the overwhelming anxiety coming at me from multiple directions. But it was a fleeting thought. And I’m going to tell you about how I got there, some lessons I’ve learned, and the next steps. Because sharing our struggles is important in the era of curated shows of our “best lives.”

Yesterday, I stitched a video on TikTok. It was a clip of Mary Poppins actor Emily Blunt making a comment about the enormous body size of a waitress who served her at a Chili’s in Thibodeaux, Louisiana. I didn’t know it at the time, because I’ve never heard of the movie Looper, but the clip is more than a decade old. It resurfaced on social media, and I happened to see it on my For You Page. She’s on a British chat show telling a relatively cute story about a Southern woman recognizing her and the funny exchange they had. The first things she says about her is that she is absolutely enormous and that she must get freebie meals from Chilis. Now, there is nothing wrong with being enormous. I, myself, am an enormous human. It wasn’t the adjective itself, it was how it was used. The tone was casually and unnecessarily cruel. Her facial expressions, her clear intention to belittle. and the audience reaction turned a word into something infinitely more sinister. Since I posted, and the video went live, it has been viewed over 240k times, has more than 4700 likes, and more than 800 comments. The video was picked up by both Glamour magazine and YahooNews! and I’ve been contacted by several news outlets, talk shows, and a newspaper asking for further comment.

But I’m not going to comment any further. Not on TikTok. And certainly not in the media who want to make me the main attraction in a circus.

Because this wasn’t about attention. Or going viral. Or 15 minutes of fame. This was about kindness. And the growing need for us to be more conscious of our intentions when we use words.

While many of the comments I received on the video are variations of “Atta Girl” and genuine responses from people who feel compelled to share an equally vile story of a thing that happened to them, many of them are unconscionably cruel responses about everything from my own body size to my choice of wardrobe to the pace at which I express myself. I have been called a pig. I have been told that I am a “skinny shamer.” I have been called stupid because, clearly, I think I know Emily Blunt and cannot tell the difference between the actor and her roles. I have been called dumb for not realizing that the British people, on whole, are blunt and unevolved world citizens who don’t understand that fat shaming is no longer acceptable in civilized society. And this morning? I received my first death threat, followed by a message telling me I “should really just go kill myself” rather than continue my “pitiful existence.”

None of these people actually know me.

Not a single one.

They don’t know that I, too, am a classically trained actor. And that I know the difference between an actor and their roles.

They don’t know that from June of 1999 until August of 2000, I lived in Great Britain, getting that conservatory theatre degree. And I learned that the British people are a lovely, welcoming, hilarious, and wonderful bunch. Did I experience fat bias there? Sure. But NOTHING like what I experience here in the United States.

And if they actually listened to what I had to say, they would understand that this is about body neutrality and not a hot take on fatphobia, all by itself. There is ZERO reason to comment to on ANYONE’S body, whether it’s fat or thin, tall or short, healthy or health challenged, black or white or whatever.

Not one of them knew that last night, I came out of Olive Garden after having a wonderful, laughter-filled birthday dinner with my beautiful nieces. And when I got into my car and turned on my phone, I had a panic attack from the hundreds of notifications, missed calls, and multiple voicemail messages that were waiting for me. Friends from high school and college were DMing me saying “Oh my God, is this you?? You’re on my FYP!” I had to pull over to the side of the road and call my best friend, shaking and in tears, because it was such an awful, overwhelming, experience. I wound up uninstalling TikTok from my phone after it drained my battery, and more importantly, my spirit. I have a small following on the app of less than 4000 people. If you scroll through my videos, you get a lot of content about my adorable cats, forays into which West Wing character I’m most like, silly lip synching, and much older content about my incredibly difficult, almost 3-year struggle to have Medicaid pay for gastric bypass surgery, which I’m still waiting on. I’m frankly more interested in watching videos of Travis Kelce worship at the altar of Taylor Swift and countdowns ‘til Christmas than people watching my own stuff. My videos are for me.

And the reason I made this particular video was because I’m sick and fucking tired of the human race doing PRECISELY what they did in the aftermath of a three-minute video filmed in the front seat of my Subaru. Making snap judgements based on faulty information and deeply ingrained bias. It’s exhausting to be part of a demographic of people who are consistently marginalized, stigmatized, and bullied on the basis of what, exactly? Taking up more space? Not being easy on the eyes? Fatphobia, fat shaming, fat discrimination, and fat hatred are very real things that I have experienced for as long as I can recall. In classrooms. On stages. In restaurants. And don’t even get me started on airplanes. I’ve stayed silent in awful situations for fear that the spotlight would be turned on me. I’ve spent 40 years squeezing my beautifully imperfect, ENORMOUS body into teensy spaces, willing myself into invisiblity because others don’t approve of my body. It’s CRIMINAL. And what does that say about the evolution of our race? If there is life outside of our existence on Earth, what the hell would they think of us? We are absolutely BRUTAL in our interactions with other people. And for what? A laugh? To make us feel stronger? Better? More vindicated? It’s a sad state of affairs and the truth is– we know better. We’re taught better. And every time we make a choice to neglect the chance to DO better, it makes us just a little less great.

So where do I go from here? Glad you asked. Cause I asked myself the same question and, ready or not, here it comes.

I’m not going anywhere. A few weeks ago, I made the conscious decision to choose happiness. To be conscious of kindness. To make the most of every crisp October morning and dinner date with my nieces. I choose to sing at the top of my lungs in a movie theater with my bestie and to take pictures with my friends, even when I wince at the double chin in the reflection that I’ve been taught to loathe for not being pretty. I choose to say no without shame when I don’t have the energy or inclination to do something. I choose not to be ashamed of the health setbacks I’ve experienced. I’m no less valuable because my hips and back are shot and my belly is big. I choose to smile at people and give as many non-body centric compliments as I possibly can. And I choose to fucking say something when I witness cruelty, bullying, and barbarity because I’ve been the target of it myself and it has made me afraid to speak up in the past. No more.

When I told Emily Blunt to do better, it wasn’t really about just her. It was about all of us.

We need to do better.

Whittling Away at the Hollow

Yesterday, we went to the baseball game.
If you saw pictures of the day on social media, it looked pretty great!
The sun was shining, the game was exciting – all the things you hope for at the end of June in Baltimore. Especially when you’re a passionate Orioles fan like me.

Unfortunately – the experience was more like a game of “find the hidden differences” between the photos and actual reality.
Kind of like ALL life on social media if I’m being entirely truthful.
Most people aim to present the most attractive, fun-loving, exciting, and happy versions of ourselves online, because somewhere it is writ that so long as we give the appearance of our best selves, that’s who we are. No one wants to see a picture of your hurt feelings or your wounded pride. I’m sure there’s a scientific explanation behind it—but hell if I know what it is.

Anyway.

Cutting to the chase, I didn’t fit in the seat.
I don’t know if you understand how hard it is for me to admit that.
Hint: It’s fairly soul crushing.
Let me say it again, just to be crystal clear.
My hips and backside did not fit in the seat that was purchased for me. The smallish armrests were cutting so tight that my right side is bruised (admittedly, this is not hard to do – I am, after all, a peach.)  My feet were pushed into the seats in front of me, causing the guy in the seat I touched to turn around and curse at me. I apologized. He didn’t care. I get it. I wouldn’t want someone’s shoes touching me either.

And here I was, a red-faced, sweating, mortified, superfat, middle aged woman – struggling.
To sit in a seat.
Not to run a marathon.
Not to end poverty or the Russian civil war.
Not even anything 95% of people see as difficult or noteworthy.
I was simply struggling to enjoy a day in my life – over a seat.
I had already been thrown for a loop when we got to Camden Yards 2 ½ hours early and the nearest handicapped parking space was over a half mile away from the front gate. But this development?
It’s “worst nightmare” material for a fat person.

It ranks right up there with hits such as:
“Don’t make eye contact in the airport so you don’t see people silently praying they don’t have to sit next to you.”
“Will the carnival ride safety thingmabob close over me,”
And the ever-popular Summertime standard,
“What are the odds I’m about to break this plastic patio furniture?”

By this point, dear reader, I’m sure you’re curious as to why I’m sharing this painful and embarrassing experience. I assure you I don’t want your sympathy. (Candidly, the sympathy makes it worse, like having a sore spot in your mouth that you can’t stop touching it with your tongue.)   
What I am hoping for is the opportunity to share something about physical disability and its impact on my overall mental health.

Because they go hand in hand for me, those two things.

No matter how hard I try to separate them or say one doesn’t have anything to do with the other.
For some folks, that’s true. For me, it’s not.
As my physical health has declined, so has my mental health.
And it has extraordinarily little to do with a number on a scale.  The last time I weighed less than 200 pounds was, I dunno, 1990?
Yes, I have become progressively heavier over time.

But it wasn’t until the heaviness stopped me that the floor fell out from under me.

Losing the ability to use my body effectively has been one of the hardest battles I’ve ever fought. And I’ve been fighting it for FIFTEEN YEARS, when I first hurt my back. In 2008, I thought nothing could be as bad as the shooting, stabbing, burning pain that ran down my legs. In 2019, I thought that nothing could be as bad as the numbness and tingling that set in or the general loss of balance that made it difficult for me to walk? (Remember that whole summer I fell down on sidewalks and ripped the shit out of my knees and elbows?) Fast forward to today, and it’s difficult for me to stand without swaying. If you’ve stood next to me for a period longer than five minutes, you’ve seen it. That slightly intoxicated- looking step back and the frantic glance for something to hold onto? Or when we’ve hugged, and you thought you were going to have to catch me because I’m pitching forward?

It’s nerve damage.
It may be irreversible.
And it’s because every doctor I’ve seen says the same things.

Lose 100 pounds, then we’ll talk.
Or,
If I operate now, your lower belly will just rip out all the progress.
Or,
This may or may not improve if you lose weight, but it couldn’t hurt to do that first.
And finally, my favorite – the ever-so-gaslighty,
You’re clearly intelligent, Erin, you don’t need me to tell you what the problem is. Let’s talk about you going keto and getting some of this unnecessary weight off and then we can plan for the future, hm?

So, you try.

But.

You cannot move well when you’re in near-constant, level 8+ pain.
So, you stop moving.
And then you stop saying yes to invitations.
And you isolate yourself.
And you get depressed.
And suddenly, you’re 44, you can barely walk a mile without crying from pain, you don’t fit in the goddamned seat, and you were raised in a time period where asking for help, accommodations, or acceptance while fat wasn’t just discouraged, it was programmed into your brain that it was not an option.
And then you decided to wage the goddamned battle of your life to have gastric bypass.

Because you remember.

You remember what it was like when you COULD do things.
When you could walk the length of the Ocean City Boardwalk and back – TWICE- for the sheer fun of it.
When you Varsity lettered 5 times in high school. 
When you knew what it felt like to go down the first hill of a roller coaster on a hot night in July.
When you could stand on stage in a spotlight and not be worried you’re going to fall over because your equilibrium is terribly poor.

And you figured out how to ask for the help you need.
And the help you deserve.
And the help you should’ve been given all along.
**

In conversations, people often ask me, “So, Erin, what’s next for you? Any big projects on the horizon?”
Yup.  I reply.  This one is really personal.  A play in two acts.  It’s called “My Life.”

And we’re currently at intermission.